The HOPE programme seeks to develop, refine and evaluate an online dementia self-management programme for people living with early stage dementia and their supporters to deliver greater control for people with dementia and their carers and a freeing up of resources in mental health and community services.
Focus groups and interviews with dementia specialists and service users has provided feedback about the content and design of the programme, leading to modifications of the platform and testing for usability and design issues.
- A seven week online self-management intervention has been developed.
- Focus groups and interviews with dementia specialists and service users from Birmingham and Solihull Mental Health Foundation Trust and Coventry City and Warwickshire County Councils provided feedback about the content and design of the programme. The web programmers (KAJISIS) and designers (Serious Games Institute Limited) have modified an existing self-management platform, which has been extensively tested for usability and design issues.
- SGIL and KAJISIS have built a digital assessment and monitoring tool for people living with mild cognitive impairment (MCI). A digital assessment and monitoring tool, automatically uploaded to a clinical teams’ database, could provide timely risk scores and enable the provision of tailored digital MCI self-management support. A digital MCI self-management programme is being developed through a Coventry University-funded PhD studentship due to begin in April 2015
- The online dementia self-management programme has the potential to provide benefits to a number of stakeholders including improved quality of life and reduced social isolation for people living with dementia and their supporters. As more people are diagnosed earlier, in line with the National Dementia Strategy, self-management programmes will become increasingly important in maintaining independent living. Providing self-management support to dementia patients at the point of diagnosis, when they still have capacity, has been associated with cost savings in the form of delayed institutionalisation and improved quality of life for patients and carers. Early provision of support can decrease institutionalisation by 22%, making self-management highly cost-effective.
- The development of a digital online MCI assessment and monitoring tool has the potential to reduce the costs of administering and recording postal administered assessments.
- Coventry University is funding a full time three year PhD studentship to further develop and refine digital self-management support to people living with MCI and dementia and their supporters, an added value contribution of £59,207 to the further development and evaluation of this resource.
- Several academic institutions, NHS sites and Alzheimer’s charities have expressed an interest in collaborating on this ambitious and exciting programme of work.
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