The Royal College of Physicians (RCP) Health Informatics Unit (HIU) is undertaking a “landscape review” of current electronic personal health and care record (PHR) activity in the UK, with assistance from a grant from NHS England.
For this review, a PHR is defined as a digital tool that helps people to maintain their health and manage their care. It may do this by enabling them to capture their own health and care data, to communicate with health and care services, and/or to have access to their care record.
The aim of this “landscape review” is to look at developments in PHRs since the Patient Information Forum and 2020health PHR publications of 2012. In particular, they want to collect up-to-date best practice across the NHS, evidence of PHR benefits, and learning about how to address barriers to adoption, as well as to identify equivalent activities, benefits and barriers in social care. This will then inform NHS policy and rollout of these important new technologies.
Whether you are a member of the public who uses a PHR, a health/care professional PHR user, a PHR supplier or have implemented (or have plans to implement) a PHR, they would like to hear from you. Please complete the short, confidential online survey. This should take no more than 20 minutes and the survey will close at 5pm on 13 September.
If you also know of other patients, health/care professional PHR users, suppliers or PHR implementers who would be interested in participating in the survey, please forward this email to them.
Finally, if you have any evidence or reports that measure the benefits of PHRs (e.g. a business case based on such benefits), please email Darren Wooldridge, HIU Project Manager, at firstname.lastname@example.org.