To celebrate its 30th anniversary in 2016, the British Paediatric Surveillance Unit (BPSU) held a conference exploring childhood rare diseases. Such was its success, BPSU is now holding a second conference, this time in collaboration with Birmingham Children’s Hospital NHS Foundation Trust.
The conference theme, “From bench to bedside: New treatments for children with rare disease”, will allow cutting edge scientific data to be presented from world leading clinicians, scientists, policy-makers and patient groups.
Presentations will consider the challenges of developing new treatments for rare diseases and the hurdles that exist in delivering these new treatments to those who most need them. The keynote speakers will be Dr Gina Radford, Deputy Chief Medical Officer for England and Ben Howlett MP, Chair of the All Party Parliamentary Group on rare, genetic and undiagnosed conditions.
Other speakers include Professor Timothy Barrett, paediatric programme lead for the NIHR Rare Disease - Translational Research Consortium, Dr Larissa Kerecuk, Rare Diseases Lead of the Rare Diseases Unit at Birmingham Children’s Hospital, Alastair Kent, Chair of Rare Disease UK, Professor Timothy Cox, University of Cambridge, Dr Sally Johnson, University of Newcastle; Dr Sarah Mole, UCL; andSheela Upadhyaya, Associate Director of the Highly Specialised Technology programme at NICE.
For more details and to book your place, visit the Royal College of Paediatrics and Child Health website.