Cambridge International Rare Disease Summit 2016

25 October 2016 Robinson College, Grange Road, Cambridge CB3 9AN

Following the sell-out success of its first summit in 2015, the Cambridge Rare Disease Network is once again bringing international leaders and local experts together in Cambridge to bridge the gap between research, industry, business and patient groups. 

Anchored by powerful patient voices, this one-day conference will explore:

  • international rare disease innovations
  • new rare disease initiatives on the horizon
  • innovations in health
  • engaging and collaborating with pharma.

A wide delegate base, representing academia, healthcare, industry, business, patients support groups and more will allow delegates to explore potential collaborations and gain a broader understanding of opportunities in rare diseases.

Confirmed speakers include:

  • Dr Yann Le Cam, Chief Executive Officer of Eurordis
  • Ben Howlett MP, Chair of All Party Parliamentary Group (APPG) on rare, genetic and undiagnosed conditions
  • Prof Patrick Maxwell, Regius Professor of Physic and Head of the School of Clinical Medicine at the University of Cambridge
  • Dr Olivier Menzel, President and Founder of Black Swan Foundation (Switzerland)
  • Alastair Kent, OBE, Director of Genetic Alliance UK and Chair of Rare Disease UK
  • Dr Paul Tunnah, CEO and Founder of Pharmaphorum Media
  • Karsten Barton, Head of Department, Frambu Centre for Rare Disorders (Norway)
  • Dr Alex McKenzie, Care for Rare and Vice-Dean Research for the Department of Paediatrics at CHEO (Canada)
  • Hiran Prag, Engagement Manager at Cambridge Consultancy Network (lead on need and feasibility study of rare disease nurse service for CRDN)
  • Dr Lucy Mackay, Students4RareDisease
  • Daniel Lewi, Cure and Action for Tay-Sachs Foundation
  • Dr Birgitte Volck, Head of Research and Development, Rare Diseases, GlaxoSmithKline
  • Dr David Pardoe, Head of Growth Projects, MRC Technology
  • Karen Harrison, Endocrine Awareness Project Manager, ALD Life
  • Emily Kramer-Kolingoff - Co-Founder and Executive Board Member of Emily's Entourage.

The conference will also host ‘Beyond the Diagnosis’, a travelling art exhibition featuring stunning portraits of children with rare and undiagnosed conditions. Led by US-based Rare Disease United, the highly acclaimed exhibit has toured art galleries and medical schools across the USA to raise awareness of all 7,000 rare diseases. This is its first time to the UK.

Following the formal proceedings, the conversation will continue over drinks at Robinson College. You are also invited to attend the gala dinner in the Crausaz Wordsworth Building to close the evening. 

To book your place or for more information, visit Eventbrite